Denmark country presentation Denmark 3 centers offering ketogenic - - PowerPoint PPT Presentation

Denmark country presentation

Denmark

• 3 centers offering ketogenic diet.
• Filadelfia
• KD (Children + adults)
• Modified (MAD)
• MCT
• LGIT
• Rigshospitalet
• KD
• Modified (MAD)
• Odense Universitetshospital
• KD
• Modified
• MCT

The keto-teams

• Filadelfia Children and adults
• Nurses: 3 outpatients , 7 inpatients nurses
• Dieticians: 3 covering in and out patients
• Doctors: 3 pediatricians and 2 neurologist

Filadelfia

Since 2002 a total of 463 pt. all type of diets We have now a total of 84 active pt.

• Classic: 61 children and 6 adults
• Modified: 14 children
• MCT: 0
• LGIT: 3

In 2018 we had a record of 32 pt. starting on the diet, and for 2019 we have until today started 22 pt. and 3 pt. more planned.

The Neuro-team

Rigshospitalet

• Dieticians: 2 covering in and out patients
• Doctors: 3 ½ pediatricians
• The neuro-team initiates KD for epilepsy-related diagnosis

Patient status

• Classic:

non active all pt. started on the diet get transferred to Filadelfia for training in solid foods

• Modified: 3 pt. all in process of weaning off the diet
• MCT:

non active

The Metabolic team

Rigshospitalet

• Dieticians:

3

• Doctors:

2

• Nurse:

½

• Social worker: ½
• The metabolic team manages IEM-related KD indications

Metabolic KD patients

• Glut-1
• 13 patients (MKD og KD)
• Glut-3
• 1 patient (MKD)
• PDH
• 9 patients (MKD og KD)

Odense Universitetshospital

• Since starting the diet; approximately 40 patients on KD or MAD.

Only for a short time on the diet.

• No new information.