(CFSAC) Webinar Meeting June 20, 2018 Admiral Brett P. Giroir, - - PowerPoint PPT Presentation

OFFICE OF THE ASSISTANT SECRETARY FOR HEALTH

Chronic Fatigue Syndrome Advisory Committee (CFSAC)

Webinar Meeting

June 20, 2018

Admiral Brett P. Giroir, M.D.

Assistant Secretary for Health

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Nicole Greene

Acting Director Office on Women’s Health

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OFFICE OF THE ASSISTANT SECRETARY FOR HEALTH

Updates on implementation of recommendations from last Chronic Fatigue Syndrome Advisory Committee meeting

Commander Gustavo Ceinos Designated Federal Officer

Recommendations

• 1. Continue school health and pediatric myalgic encephalomyelitis and chronic fatigue

syndrome(ME/CFS) educational initiatives as recommended during January 12-13, 2017 in person CFSAC meeting.

• The Pediatric Education workgroup will continue in 2018.
• The last meeting of the workgroup was held on May 14, 2018.
• 2. CFSAC endorses the International Association for Chronic Fatigue Syndrome/Myalgic

Encephalomyelitis proposal for changes to the International Classification of Diseases- 10-Clinical Modification coding for ME/CFS.

• The Designated Federal Officer has been in contact with CDC’s National Center for Health

Statistics (NCHS). They are working on the best approach to address this recommendation.

• This process is not solely driven by NCHS. NCHS must consult with clinical groups and other

stakeholders, and work with the World Health Organization in order to change or assign a new code for any condition.

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Recommendations

• 3. CFSAC recommends that the Centers for Medicare and Medicaid Services (CMS) be

added as an ex-officio when the charter is renewed in 2018.

• The Designated Federal Officer has been in contact with the last ex-officio representative from
• CMS. CMS will be added back as a CFSAC ex-officio member if the charter is renewed by the

HHS Secretary.

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CFSAC Membership Status - June 2018

• Federal Register Notice
• Published: March

22, 2018

• Nominations Deadline: April

23, 2018

• Applications are

under review and the HHS Secretary will make final appointments.

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CFSAC Membership Status - June 2018

Patient/ Health Care Delivery

• r

Committee Members Membership Start Date End Date Care Giver Org Concerned with Researcher Geo Location Faith Newton, Ed.D Voting/SGE 07/01/2014 01/02/2019 X ME/CFS DE Alisa Koch, M.D. Voting/SGE 06/16/2014 12/16/2018 X NY Donna Pearson Voting/SGE 06/16/2014 12/17/2018 X FL Jose Montoya, M.D. Voting/SGE 06/16/2014 12/17/2018 X CA Lucinda Bateman, M.D. Voting/SGE 12/13/2017 12/12/2021 X UT Gudrun Lange, PhD Voting/SGE 12/13/2017 12/12/2021 X NY Amrit Shahzad, MBA Voting/SGE 12/13/2017 12/12/2021 X CA VACANT VACANT VACANT X X X VACANT VACANT VACANT Leah Williams** Non voting 06/29/2017 06/29/2019 X X X MA Courtney Miller** Non voting 06/29/2017 06/29/2019 NV Ben HsuBorger** Non voting 06/29/2017 06/29/2019 NJ

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