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Carer respite: the key to a sustainable aged care system? Madeleine - - PowerPoint PPT Presentation
Carer respite: the key to a sustainable aged care system? Madeleine - - PowerPoint PPT Presentation
Carer respite: the key to a sustainable aged care system? Madeleine Gearside Melissa Docker Acknowledgment of Country I would like to acknowledge the Traditional Custodians of this Land. I would also like to pay respect to the Elders both past
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About Carers NSW
Carers NSW is the peak non-government organisation for carers in New South Wales (NSW). Our goals are to:
- Be a leading carer organisation in which carers have confidence
- Actively promote carer recognition and support
- Actively support carers to navigate a changing service landscape that will
be characterised by ongoing policy reform
- Promote connected community experiences and opportunities for carers
that are inclusive of diverse carer groups
- Lead and advocate for carer-specific and carer-inclusive policy making,
research and service delivery
- Continue to be a quality-driven, responsive and carer-focused organisation.
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- Provide care and support to a family member
- r friend who has a disability, mental illness,
drug and/or alcohol dependency, chronic condition, terminal illness or who is frail.
- This definition does not include:
- paid care workers
- formal volunteers
- parents / foster carers / kinship carers
- 854,300 carers in NSW, including
approximately 273,900 primary carers*
* 2018 Survey of Disability, Ageing and Carers
Who are carers?
About carers
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- Review of published evidence and literature on carer respite as part of
the Carer Respite Alliance project, led by Carers NSW
- Carers NSW 2018 Carer Survey (n=1,830), Carers NSW 2020 National
Carer Survey (n=7,735)
- Carers NSW experience delivering a range of programs to older carers
in NSW, including the new Carer Gateway services in Hunter New England, Central Coast and North Coast from April 2020
Evidence base
Background
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- Aged care reforms, e.g.
Consumer Directed Care
- Transition of existing respite
services and carer-focused wellbeing supports
- Royal Commission into Aged
Care Quality and Safety
- Carer Gateway
implementation
Aged care and carer support sectors
Background
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- Embedded in legislation:
- Aged Care Act 1997
- Aged Care (Transitional
Provisions) Principles 2014
- Provision is a legal obligation
- 63 days of funding for residential
respite care per calendar year
- Aged Care Royal Commission
findings
Respite services in the aged care sector
Context
“Respite care requires urgent attention and expansion in scope, variety and scale. Current respite
- fferings are difficult to navigate,
not financially viable for providers and insufficient to address the needs of older people and their carers”
- Counsel Assisting final submissions, Royal
Commission into Aged Care, October 2020
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Types and benefits of respite
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- Nation-wide survey of family and friend carers (aged 16+ years)
- Developed in consultation with expert reference committee and in
partnership with the Carer Associations in each state and territory
- Range of topics to inform research and advocacy:
- Demographics
- The caring relationship
- Services and support
- Experiences of paid work
- Health and wellbeing
- Survey distributed in online and hard copy form
Not representative, more in-depth questions than SDAC
Carers NSW 2020 National Carer Survey
Heading
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Demographic characteristics
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Carers NSW 2020 National Carer Survey
Carer statistics
0.0% 5.0% 10.0% 15.0% 20.0% 25.0% 30.0% 35.0% 40.0% 45.0% Emergency respite Planned respite % currently using % would like to use more
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- Availability
- Awareness
- Accessibility
- Appropriateness
- Affordability
See Carers NSW (2016) National survey of carers' respite needs: Final report
Barriers to access
“More respite needs to be available that is affordable. [A] level 2 package is approx. $43 yet daycentre costs $70. And then you have to pay for transport and admin and case management fees. The maths doesn’t add up.”
- Carers NSW 2018 Carer Survey
respondent
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Developments and recommendations
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Bellamy, J., Paleologos, Z., Kemp, B., Carter, S. & King, S. (2014) Caring into Old Age: The wellbeing and support needs of parent carers of people with disabilities Carers Australia (2018) Improving access to aged residential respite care Carers NSW (2016) National survey of carers' respite needs: Final report Carers NSW (2018) Carers NSW 2018 Carer Survey: Summary report Carers NSW (2020) 2020 National Carer Survey: Summary report Carers NSW (2020) COVID-19 and carers: A review of the evidence Carers NSW (2020) The COVID-19 Pandemic: Challenges and opportunities for carers in NSW Hamilton, M., Giuntoli, G., Johnson, K. & Fisher, K. (2016) Transitioning Australian Respite Kemp, B., King, S., Paleologos, Z., Bellamy, J. & Mollenhauer, J. (2016) Carers: Doing it Tough, Doing it Well Mollenhauer, J., King, S., Bodiam, T. & Bellamy, J. (2013) Caring for a child with an intellectual disability and challenging behaviours Phillipson, L., et aI., Knowledge, help-seeking and efficacy to find respite services: an exploratory study in carers of people with dementia in the context of aged care reforms. BMC Geriatrics, 2019. 19 (2).
References
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