caregivers with close relatives in Nursing Home (NH) Pr Anne-Sophie - PowerPoint PPT Presentation

Effect of a program for family caregivers with close relatives in Nursing Home (NH) Pr Anne-Sophie Rigaud, Catherine Bayle, Souad Damnee University of Paris Descartes, Assistance Publique-Hôpitaux de Paris France

CONFLICT OF INTEREST DISCLOSURE I have no potential conflict of interest to report

Caregivers with close relatives in Nursing homes (NH) Feeling of caregivers (Givens &al 2014) • Inadequate personal care • Lack of communication with NH professionals • Challenges of surrogate decision making • Anxiety and stress Needs for: • Emotional support • Education regarding prognosis • Better communication with professionals Promising interventions in the literature (Shultz et al, 2014)

Objectives: Help caregivers understand: - Disease & institution caring management - Their own role 1 course = 7 sessions 2hours/week • Focus groups 10 -15 caregivers • Interviews Caregivers • Neurodegenerative disease & outcome • Nutrition & NH solution • Focus groups • Caregivers feelings linked to Professionals • Interviews relative in NH in NH • Institution caring management & resident day schedule • Caring until death 4

Caregivers Assessment Pre and Post with a mixed method Quantitative • CADI: : Carers Assessment of Difficulties Index (Nolan et al 1998) • CASI: Carers Assessment of Satisfaction Index • CAMI Carers Assessment of Managing Index • Competency Feeling Questionnaires Qualitative • Interviews (Braun & Clarke)

Results 16 7 15 Nursing homes Courses professionals • 80 Caregivers Mean age 67 430 • 76 %Women Followers • 5 drop-out

Results CADI CAMI CASI Ex CADI NA for me Not stresing Stressing Very stressing 0 1 2 3 Σ Rep 1, 2 et 3 % ans0 > 50%  Scarce Difficulty Moy Σ ans 123 % Σ ans 1, 2 et 3 > 2 > 50%  Stessing  Occurring difficulty Difficulty 7

CADI: Difficulties for caregivers PRE Health POST professionals not Program understanding Financial Culpability difficulties Not enough  Real help relationship  Free time  Sleep Quality  Pause  Holiday 8

CASI: Care and managing strategies Pre = Passive Post = Involving Program Accept situation Boost mind drinking, Search for smoking positive Patient  responsible Participate Change one’s in support mind reading Live day after group day Calm down Anticipate by Boost mind swimming, planning drinking & walking smoking 9

CAMI: Caregiver Satisfaction POST PRE Program Give pleasure Give pleasure Maintain dignity Maintain Help = dignity expression of love Help = expression of Find small love improvements Interests & contacts 10

Competency feeling Questionnaire • Satisfied with contact with patient • Patient does not ask more than needed • I can leave the person alone • I do all that I must do 11

Qualitative analysis • Better understanding of: – Nursing home caring management – Disease: Cognitive & behavioural disorders • Improvement of: – Communication with health professionals – Relationship with relative • Decrease of emotional pain

Discussion • Limits: no randomized control trial • Advantages – 1 st program in France for caregivers with relatives in institution – Codevelopment with caregivers to meet their needs – Partnership between health and social professionals – Dissemination in Paris suburbs, Bayonne, Lyon

Thank you