An E va lua tio n Pla n o f Co mpa ssio na te Otta wa s F a ith - - PowerPoint PPT Presentation
1 An E va lua tio n Pla n o f Co mpa ssio na te Otta wa s F a ith Co mmunitie s I nitia tive T RAL E E NA ROUL E AU AND ANDRE A L E F E BVRE PSY7103 R 26 T H , 2019 NOVE MBE Ove rvie w 2 L ite ra ture Re vie w
T RAL E E NA ROUL E AU AND ANDRE A L E F E BVRE PSY7103 NOVE MBE R 26T
H, 2019
► L
► Pro g ra m De sc riptio n ► E
► Pro po se d E
► Sha ring F
► T
he Compassionate City Char te r (Ke lle he ar , 2015)
► Compassionate c itie s ar
e c ommunitie s…
►I
n whic h c a ring fo r o the rs during c risis a nd lo ss is c o nside re d e ve ryo ne ’ s re spo nsib ility
►T
ha t e nc o ura g e a nd fa c ilita te c a ring fo r o the rs during illne ss, disa b ility, a g ing , de me ntia , g rie f, b e re a ve me nt, a nd lo ng -te rm c a re
►I
n whic h so c ia l ne two rks, spa c e s, po lic ie s, a nd c o nduc t a re dire c te d to wa rds induc ing so c ia l c ha ng e s in sc ho o ls, wo rkpla c e s, tra de unio ns, c hurc he s a nd te mple s, ho spic e s a nd nursing ho me s, a nd muse ums a nd a rt g a lle rie s
► Churc he s and te mple s will have at le ast o ne de dic ate d g ro up fo r e nd o f life c are
suppo rt
► Palliative Car
e in Canada (T
► Co mpa ssio na te c a re le a ve b e ne fit pro g ra m la unc he d in 2004 (Cro o ks & Willia ms,
2008)
► Me dic a l Assista nc e in Dying le g a lize d in 2016 (Bill C-14, 2016)
► Ne e d fo r q ua lity pa llia tive c a re a s a n a lte rna tive o ptio n (Bill C-277, a n Ac t pro viding fo r the
De ve lo pme nt o f a F ra me wo rk o n Pa llia tive Ca re in Ca na da ) (Gla du, 2016)
► Mo re se nio rs in de c lining he a lth with c o mple x ne e ds in Ca na da
► 13% o f Ca na dia ns 15 a nd o lde r: pro vide d e nd-o f-life c a re to fa mily me mb e r/ frie nd (T
urc o tte , 2013)
► 28% pro vide d c a re to c hro nic a lly ill, disa b le d, o r a g ing fa mily me mb e r/ frie nd (T
urc o tte , 2013)
► 64% b a la nc ing c a re g iving in a dditio n to pa id wo rk (Ca na dia n Ho me Ca re Asso c ia tio n, 2003) ► 29-33% fe lt this c a use d a stra in with fa mily me mb e rs (Ca na dia n Ho me Ca re Asso c ia tio n, 2003)
► Pr
e vious E valuations of Compassionate Communitie s
► Mc L
va lua tio n o f Milfo rd Ca re Ce ntre ’ s Co mpa ssio na te Co mmunitie s Pro g ra m
► Pr
am: e ng a g e a nd re c ruit c o mmunity o rg a niza tio ns, ho st inte ra c tive wo rksho ps o n
de a th, lo ss, a nd suppo rt, a nd inte g ra te c o mmunity e duc a tio n pro je c ts
► E
va lua tio n de mo nstra te d inc re a se d c o mmunity pa rtne rs, spo nso rships, se e d g ra nt a pplic a tio ns, a nd c o mmunity e ve nts a nd e xhib itio ns o n dying
► Gó me z-Ba tiste e t a l.’ s (2018) E
va lua tio n o f Vic ’ s Co mpa ssio na te Co mmunity
► Pr
am: g ro up o f 48 c o mmunity o rg a niza tio ns tha t e ng a g e d in ne e ds a sse ssme nt a nd
fo unda tio n wo rksho p fo r tra ining o n c o mpa ssio na te c o mmunitie s
► E
va lua tio n de mo nstra te d hig h numb e r o f a c tivitie s a nd a tte nde e s, hig h le ve l o f sa tisfa c tio n, a nd inte g ra te d pa rtic ipa nt fe e db a c k to c ha ng e se c o nd ye a r o f de live ry
“A c o mpassio nate Ottawa suppo rts and e mpo we rs individuals, the ir familie s, and the ir c o mmunitie s thro ug ho ut life fo r dying and g rie ving we ll.” (Co mpassio nate Ottawa, 2019)
Missio n: Ra ise Awa re ne ss
► Cha ng e na rra tive a nd e nc o ura g e c o nve rsa tio ns
a ro und dying , de a th, a nd b e re a ve me nt
E ng a g e a nd E mpo we r
► E
ng a g e a nd pro vide suppo rt to Otta wa c o mmunitie s to de ve lo p the ir c o mpa ssio na te a ppro a c h
E duc a tio n a nd T ra ining
► De ve lo p wo rksho ps a nd c urric ulums to suppo rt
c o mmunity, vo lunte e rs, fa milie s a nd individua ls
Pro g ra m De sc riptio n, Go a ls, a nd Ob je c tive s
►
T e a m o f re lig io usly-c o nne c te d individua ls who c re a te c o nne c tio ns with fa ith c o mmunitie s thro ug ho ut Otta wa
►
Ac tivitie s fo c us o n o utre a c h a nd e duc a tio n o f Co mpa ssio na te Otta wa ’ s missio n, a lo ng with pro mo tio n o f Adva nc e d Ca re Pla nning (ACP) wo rksho ps a nd pub lic e ve nts
►
Sta ke holde r s: Co mpa ssio na te Otta wa te a m me mb e rs, re lig io us
le a de rs, fa ith c o mmunity me mb e rs, tho se de a ling with g rie f a nd lo ss, a nd individua ls invo lve d with pa llia tive c a re a nd he a lthc a re syste m
►
De sire to a ug me nt pro g ra m g ro wth thro ug h:
► De ve lo pme nt o f me a sura b le indic a to rs ► Inte nsifie d dia lo g ue with fa ith c o mmunitie s ► Inc re a se d numb e r a nd spe c ific ity o f wo rksho p pro g ra ms ► Pa rtne rships with the o lo g ic a l tra ining institutio ns
Pr e vious E valuation Ac tivitie s
► T
wo Unive rsity o f Otta wa e va lua tio ns o f ACP wo rksho ps o ffe re d to a ll c o mmunitie s
► De mo nstra te d kno wle dg e a c q uisitio n, hig h sa tisfa c tio n, a nd e ffo rts to e ng a g e in
a dva nc e d c a re pla nning
► F
► Wo rksho p fa c ilita to rs c ha ng e d wo rksho p c o nte nt ► Sta ff de ve lo pe d da ta b a se o f wo rksho p sa tisfa c tio n ► Co ntinuo us fo llo w-up pro c e ss de ve lo pe d fo r g a the ring fe e db a c k o n po st-wo rksho p
a c tio ns
Clie nts of pr
am: Re lig io us le a de rs a nd fa ith
c o mmunity me mb e rs
Pe r sonne l of pr
am: 2 full-time pa id sta ff, 8 me mb e rs
a ith Co mmunitie s te a m (vo lunte e rs, fa ith c o mmunity me mb e rs, a nd re lig io us le a de rs), 29 Co nve rsa tio ns a nd ACP fa c ilita to rs/ le a de rs, a nd 8 me mb e rs o f E va lua tio n te a m
Sour c e of funding for pr
am: Co mmunity F
a no nymo us do no rs
Str uc tur e of Pr
am
►
Wha t do fa ith c o mmunitie s fe e l a re the stre ng ths o f Co mpa ssio na te Otta wa ’ s e ng a g e me nt with the ir o rg a niza tio n? Wha t do fa ith c o mmunitie s fe e l a re the c ha lle ng e s o f Co mpa ssio na te Otta wa ’ s e ng a g e me nt with the ir o rg a niza tio n?
►
Wha t a re so me o f the he sita nc ie s o r re sista nc e s a c ro ss re lig io us de no mina tio ns tha t inhib it g ro ups fro m jo ining with Co mpa ssio na te Otta wa ?
►
Wha t c ha ng e s wo uld c urre ntly une ng a g e d fa ith c o mmunitie s re q uire in
Otta wa ?
►
F
e ng a g e d with Co mpa ssio na te Otta wa , ha s fa ith c o mmunitie s’ me mb e rs’ thinking a b o ut ho w to suppo rt pe o ple (individua l, c a re g ive rs, fa milie s) ne a ring the e nd-o f-life c ha ng e d?
De ve lopme nta l E va lua tion Ra tiona le
Use ful fo r c o ntinua l mo nito ring a nd re fo rma tio n Ado pts a syste ms a ppro a c h Re spe c ts dive rse sta ke ho lde rs Re fle c ts c a pa c ity fo r inno va tio n
Appr
ia te ne ss for Pr
a m’s Cur r e nt Sta te
Ra pidly de ve lo ping o rg a niza tio n (3 ye a rs o ld) No ve l so urc e o f e va lua tio n Co nsiste nt with CO’ s fe a sib ility a nd time line s
Data Sour c e s 18 c ur r e ntly e ngage d faith c ommunitie s with var ying the ologie s (Anglic an, Je wish, Pr e sbyte r ian, Roman Catholic , & Unite d)
Co nta c ts with re lig io us le a de rs
3 online lists of appr
c hur c he s, synagogue s, and mosque s in Ottawa that ar e not e ngage d with CO
Co nta c ts to b e de te rmine d b y future e va lua to rs/ CO
Size of sample : 10 e ngage d CO faith c ommunitie s and 10 une ngage d faith c ommunitie s for inte r vie ws; appr
une ngage d faith c ommunitie s for
sur ve ys
Co nta c t info rma tio n to b e c o lle c te d b y future e va lua to rs/ CO
Data Sour c e s
Re lig io us le a d e rs will b e c o nta c te d a c c o rd ing to the fo llo wing princ iple s: Re spo nsivity to c o nta c t a tte mp ts Dive rsity o f the o lo g y Re pre se nta tive ne ss o f g e o g ra phic a re a s Pa rtic ipa nts mig ht a lso b e c o nta c te d fo r inte rvie ws a c c o rd ing to the ir pre vio us re spo nse s to o nline surve y
Da ta Colle c tion Me thods
70 une ng a g e d fa ith c o mmunitie s will re c e ive a n o nline Qua ltric s surve y c o nsisting o f 5 q ue stio ns Co nc urre ntly, 10 e ng a g e d a nd 10 une ng a g e d fa ith c o mmunitie s will b e c o nta c te d fo r a 30- minute inte rvie w
Data Colle c tion Me thods
E va lua to rs will c re a te a nd a dministe r Qua ltric s surve y E va lua to rs will a lso c o nduc t in-pe rso n a nd pho ne inte rvie ws with re lig io us le a de rs E va lua to rs, 2 CO sta ff me mb e rs, a nd vo lunte e rs will a ssist with tra nsc riptio ns T he me s will b e c o de d b y e va lua to rs a nd inte rpre te d q ua lita tive ly
Que stio ns in inte rvie ws fo r e ng a g e d fa ith c o mmunitie s will re la te to :
Stre ng ths a nd sug g e stio ns fo r CO’ s e ng a g e me nt with fa ith c o mmunitie s E xpe rie nc e o f CO a c tivitie s Cha ng e s in e nd -o f-life c a re a ttitud e s within re lig io us o rg a niza tio n
Que stio ns in o nline surve y a nd inte rvie ws fo r une ng a g e d fa ith c o mmunitie s will re la te to :
Pre se nc e o f pa llia tive c a re d isc ussio ns within fa ith c o mmunity Ro le o f fa ith c o mmunity in c o nve rsa tio ns a b o ut d ying a nd g rie ving Ope nne ss to pa rtne ring with CO in the future
De sc r iption of Me asur e s
E xample s of Sur ve y and/ or Inte r vie w Que stions
►Une ng a g e d F
a ith Co mmunitie s
► Wha t ha ve yo u he a rd a b o ut CO? ► Wha t do yo u think o f CO’ s missio n? ► Wha t wo uld yo u re q uire fro m CO to pa rtne r with the m in the
future ?
►E
ng a g e d F a ith Co mmunitie s
► Whe n a nd ho w did yo u first c o nne c t with CO? ► Did CO wo rksho p a tte nda nc e b y me mb e rs o f yo ur fa ith
c o mmunity c ha ng e ho w the y a ppro a c he d e nd-o f-life c a re within yo ur fa ith g ro up?
► Wha t do yo u think CO sho uld ke e p do ing in the ir c urre nt
a ppro a c h to fa ith c o mmunitie s? Wha t sho uld CO c ha ng e ?
Ava ila b le Pe rso nne l
► 2 CO sta ff me mb e rs ► F
a ith Co mmunitie s te a m me mb e rs
► E
va lua tio n te a m me mb e rs Po te ntia l So urc e s o f Suppo rt
► T
ra nsc riptio ns o f inte rvie ws
► Assista nc e with fa c ilita ting inte rvie ws ► Ac q uisitio n o f c o nta c t info rma tio n fo r
fa ith c o mmunitie s
T ime line
► Ja nua ry 2020:
► Co lle c t list o f c o nta c t info rma tio n fo r re lig io us le a de rs ► Cre a te a nd fina lize surve y a nd inte rvie w q ue stio ns ► Administe r surve y a nd c o mme nc e inte rvie ws
► F
e b rua ry a nd Ma rc h 2020:
► Co nduc t inte rvie ws a nd fa c ilita te surve ys ► T
ra nsc rib e inte rvie ws
► April 2020
► Synthe size inte rvie ws, c o de fo r the me s, a nd pre pa re fina l e va lua tio n re po rt
► T
hr
:
► Atte nd F
a ith Co mmunitie s te a m a nd E va lua tio n te a m me e ting s a nd re g ula rly lia ise with Cha rle s
Plan for Communic ating F indings
► F
inding s will b e disse mina te d thro ug h pre se nta tio n to CO E va lua tio n te a m a nd re po rt de live re d to CO le a de rs
► Ba se d o n finding s, do c ume nt c la rifying CO misc o nc e ptio ns a nd
fra me wo rk fo r a ppro a c hing future fa ith c o mmunitie s will b e c re a te d
► T
he se will b e sha re d with CO fa c ilita to rs, vo lunte e rs, a nd sta ff me mb e rs
► Do c ume nt c la rifying CO misc o nc e ptio ns ma y a lso b e sha re d o n CO we b site
► Atte nda nc e o f CO me e ting s, c o nsulta tio n with Cha rle s, a nd fe e db a c k
fro m CO me mb e rs a b o ut fe a sib ility a nd re le va nc e will sha pe c o nte nt o f CO misc o nc e ptio ns do c ume nt a nd fra me wo rk fo r a ppro a c hing future fa ith c o mmunitie s to e nsur
e use
► Re c o mme nd a tio ns c o uld re la te to : fre q ue nc y o f c o nta c t, kind s o f a c tivitie s o ffe re d , a nd
sug g e stio ns fo r ind uc ing lo ng -la sting c ha ng e s in thinking a b o ut e nd-o f-life c a re
Possible F indings
► F
a ith c o mmunitie s a ppre c ia te CO’ s c urre nt a ppro a c h
► Do c ume nte d stre ng ths will b e inc o rpo ra te d into fra me wo rk fo r a c c e ssing future fa ith
c o mmunitie s
► F
a ith c o mmunitie s re c o mme nd mo dific a tio ns to CO’ s c urre nt a ppro a c h
► T
he se c ha ng e s will b e inc o rpo ra te d into CO’ s fra me wo rk fo r e ng a g ing future fa ith c o mmunitie s a nd will b e c o nside re d a t a n a dministra tive le ve l
► Une ng a g e d fa ith c o mmunitie s e xpre ss a n inte re st in jo ining with CO in
the future
► F
a ith Co mmunitie s te a m a nd ACP a nd Co nve rsa tio ns te a m will re a c h o ut a nd o ffe r
► Une ng a g e d fa ith c o mmunitie s e xpre ss the o lo g ic a l diffe re nc e s tha t
pre se nt b a rrie r to pa rtne rship
► F
a ith Co mmunitie s te a m will c o nside r the se b a rrie rs whe n a ppro a c hing future fa ith c o mmunitie s o f simila r de no mina tio n
Bill C-14: An Ac t to a me nd the Crimina l Co de a nd to ma ke re la te d a me ndme nts to o the r Ac ts (me dic a l a ssista nc e in dying ). 3rd Re a ding June 17, 2016, 42nd Pa rlia me nt, 1st se ssio n. Re trie ve d fro m the Pa rlia me nt o f Ca na da we b site : https:/ / la ws-lo is.justic e .g c .c a / PDF / 2016_3.pdf Ca na dia n Ho me Ca re Asso c ia tio n (2003). Canadian ho me c are human re so urc e s study. Re trie ve d fro m http:/ / www.c dnho me c a re .c a / me dia .php? mid=1030 Co mpa ssio na te Otta wa . (2019). Co mpassio nate Ottawa- L iving as lo ng as yo u c an as we ll as yo u c an. Re trie ve d fro m https:/ / c o mpa ssio na te o tta wa .c a / Cro o ks, V. A., & Willia ms, A. (2008). An e va lua tio n o f Ca na da ’ s c o mpa ssio na te c a re b e ne fit fro m a fa mily c a re g ive r’ s pe rspe c tive a t e nd o f life . BMC Palliative Care , 7(14), 1-8. Gla du, M. MP Marilyn Gladu intro duc e s Bill C-277: An ac t pro viding fo r the de ve lo pme nt o f a frame wo rk o n palliative c are in Canada. Re trie ve d fro m http:/ / www.ma rilyng la du.c o m/ ne ws/ mp- ma rilyn-g la du-intro duc e s-b ill-c -277--a n-a c t- pro viding - fo r-the -de ve lo pme nt-o f-a - fra me wo rk-o n- pa llia tive -c a re -in-Ca na da Gó me z-Ba tiste , X., Ma te u, S., Se rra -Jo fre , S., Mo la s, M., Mir-Ro c a , S., Amb la s, J., . . . , K e lle he a r, A. (2018). Co mpa ssio na te c o mmunitie s: De sig n a nd pre limina ry re sults o f the e xpe rie nc e o f Vic (Ba rc e lo na , Spa in) c a ring c ity. Annals o f Palliative Me dic ine , 1-10. K e lle he a r, A. (2015). T he c o mpa ssio na te c ity c ha rte r: I nviting the c ultura l a nd so c ia l se c to rs into e nd o f life c a re . I n K . We g le itne r, K . He ime rl, & A. K e lle he a r(E ds.), Co mpassio nate c o mmunitie s: Case studie s fro m Britain and E uro pe . L
: Ro utle dg e . Mc L
. (2013). Co mpassio nate c o mmunitie s pro je c t e valuatio n re po rt. L ime ric k, I re la nd: Milfo rd Ca re Ce ntre . T urc o tte , M. (2013). F amily c are g iving : What are the c o nse q ue nc e s? Re trie ve d fro m Sta tistic s Ca na da : http:/ / www.sta tc a n.g c .c a / pub / 75-006-x/ 2013001/ a rtic le / 11858-e ng .pdf