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Amarpreet Kaur Wednesday 21 st August 14 th Conference of the - - PowerPoint PPT Presentation
Amarpreet Kaur Wednesday 21 st August 14 th Conference of the - - PowerPoint PPT Presentation
Amarpreet Kaur Wednesday 21 st August 14 th Conference of the European Sociological Association Germline Genome Editing (GGE) is a technique through which specific parts of DNA in a egg, sperm or embryo can be added, removed or replaced
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§ Human Fertilisation and Embryology
Act 2008 (HFE Act)
§ 14 –day rule § Prohibits implanting genetically
modified cells/embryos into a woman
§ Human Fertilisation and Embryology
Authority (HFEA)
§ Licenses research and treatment
involving gamete and human embryos
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§ Illegal in country of residence § Condition not licensed § Cheaper in another country § Better expertise § Research trials § Access/Monitoring § Support/Trust
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§ Defined as transnational healthcare in the
field of assisted reproduction
§ Inclusive of other terms such as ‘transnational
reproduction’ and ‘cross-border reproductive care/services’
§ Growing global phenomenon
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§ Online survey – 521 participants
§ Findings report online
§ Interviews with
professionals/experts
§ Interviews/focus groups with
people affected by genetic disease
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§ Cannot regulate practices in other countries § Could still be just as (if not more) expensive § Follow-up care could be more difficult § Hard to regulate/monitor
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§ To eradicate ‘serious’ single-gene disorders
from the human genome
§ To procreate without passing on a heritable
disease
§ To prevent future generations having to face
difficult decisions
§ To have genetically related offspring which
belongs to themselves
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§ BBC News, (2018). 'Gene-edited babies': China halts work of He Jiankui. [online]Available from:
https://www.bbc.co.uk/news/world-asia-china-46382662 Accessed 18th August 2019.
§ HFEA, (2018). About Us. [online] Available from: https://www.hfea.gov.uk/about-us/ Accessed: 18th
August 2019. Human Fertilisation and Embryology Authority.
§ Inhorn MC, (2015). Cosmopolitan Conceptions: IVF Sojourns in Global Dubai. Durham. Duke
University Press.
§ Jasanoff S, and Hurlbut JB, (2018). A global observatory for gene editing. [online] Available from:
https://www.nature.com/articles/d41586-018-03270-w Accessed 21st August 2019.
§ Kaur A, (2019). Understandings of Genetic Editing and its Potential Uses within Human
Reproduction Survey Report. [online] Available from: http://www.amarpreetkaur.co.uk/img/Final- Survey-Report.pdf Accessed: 18th August 2019.
§ legislation.gov.uk, (2018). Human Fertilisation and Embryology Act 2008. [online] Available from:
https://www.legislation.gov.uk/ukpga/2008/22 Accessed: 18th August 2019.
§ Lovell-Badge R, (2019). CRISPR babies: a view from the centre of the storm. [online] Available
from: http://dev.biologists.org/content/146/3/dev175778 Accessed 21st August 2019. The Company
- f Biologists.
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