unexplained illnesses: BioMarkers for CFS/ME Daniel Dahdah St - - PowerPoint PPT Presentation

Customising daily recordings using Patient Centred Outcomes in unexplained illnesses: BioMarkers for CFS/ME

Daniel Dahdah – St Jude's Clinic, Sydney

’Cause and Effect’ model to affect Form AND Function

Where and when does my body come under my conscious control and yet is inextricably connected to influential areas that are supposedly beyond my control? Whole systems = Interconnectedness = Diversity of symptoms

Paradigms frame questions

More ?

How do we?

Visualise simultaneous and dramatic symptom reductions across multiple systems?

Detect the early signs of success? Distinguish between genuine improvements and natural history remissions? Establish a link between CFS/ME and other comorbidities? Predict time frames for recovery and who likely responders may be?

Symptoms into PCO’s = Valued BioMarker

Link to Vanessa – Success and Longevity Niki – The need for Baselines Patrick – Movement to self care Mick – role of antidepressantsi

Accountability tool, Building Trust in Practitioner, Assessing Effectiveness, Restoring Hope in future recovery, Creating perspective, Enhanced discussion with practitioner

Patient Centered Healthcare – Criteria

• 1. Safe and effective
• 2. Logical and easy to understand
• 3. Empowering and practical self-help strategies
• 4. Easily accessible recording with features built in
• 5. Provides a broader perspective –

trends/contextualizes flare-ups/crashes

• 6. Values driven – meaningful moments for clients /

practitioners / researchers

• 7. Autonomy and interdependence healthcare
• 8. Collaborates with healthcare workers globally

Pooled data, Replicated and Leveraged

• 9. Time-saving Intake questionnaires >>

Prepopulated Excel templates 10.Cost effective with a decreasing cost scale due to permanency of results

Guide to speed of response

Known Habits Unknown Habits Reactions to Medication/s No adverse Reaction to Medications

1 2 3 4

Frequency of visit and distance travelled, Medications used and Skype sessions influenced outcomes.

Finding the right balance

• Whole Systems – Habit Driven Health

Macroscopic and Microscopic

Somatosensory Afferentation & Dysafferentation

BioSequences + BioRecommendations = BioSystem. BioMarkers used as DoS

Disclaimer: This is an introduction to the type of care offered and the examples given do not constitute professional advice for individual application. L Sequence

Gaining voluntary control of the CNS - ANS and Somatic System?

Rotational induced Dysautonomia / Penumbra?

Zhand et al in Neurological Research 2012 VOL. 34 NO. 5 501 VAD >> was the only predictor to BA deformation to the weaker side >> haemodynamic changes to the brainstem and increased sus ceptibility to 1 thrombosis,

• 2. microembolization,
• 3. stretched cranial nerves, and
• 4. brainstem compression