Patient and Stakeholder Engagement in Research - - PowerPoint PPT Presentation

Patient and Stakeholder Engagement in Research

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• We Engage Patients and Other Stakeholders at

Every Step

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Elements of the Rubric

• Planning the Study—Real World Examples

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• 2. Conducting the Study:

Real World Examples

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Disseminating the Study Results— Real World Examples

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Putting the Rubric to Work

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• Engagement Officers

Lessons Learned

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Engagement Resources

PCORI’s “Engagement Rubric”

http://www.pcori.org/sites/default/files/PCORI-Engagement-Rubric- with-Table.pdf

Sample Engagement Plans

http://www.pcori.org/sites/default/files/PCORI-Sample-Engagement- Plans.pdf

PCORI Compensation Framework

http://www.pcori.org/sites/default/files/PCORI-Compensation- Framework-for-Engaged-Research-Partners.pdf

Engagement in Research website page

http://www.pcori.org/content/engagement-research

PCORI’s Methodology Standards PC-1 to PC-4

http://www.pcori.org/assets/PCORI-Methodology-Standards1.pdf

Engagement Resources From the Portfolio

Article co-written by Parent Partner, Amy Kratchman http://pxjournal.org/cgi/viewcontent.cgi? article=1057&context=journal Article by PI, Karen Wernli, about engagement http://researchinvolvement.biomedcentral.com/ articles/10.1186/s40900-016-0020-4 Video about Karen Wernli’s project https://www.youtube.com/watch?v=llsYo_pqyZQ Engagement “Toolbox” from PI Elizabeth Cox’s project https://www.hipxchange.org/TOPPER

Questions?

Thank You!