Controlling Childrens Pediatric Asthma Care Asthma in Chicagos - - PowerPoint PPT Presentation

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Controlling Childrens Pediatric Asthma Care Asthma in Chicagos - - PowerPoint PPT Presentation

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Controlling Childrens Pediatric Asthma Care Asthma in Chicagos South Side in Communities | iDX Workshop | Spring 2015 | Community Team | IxD Workshop | Spring 2015 | Community Team Community Team | Ge Cao, Aaron Wolf, Veerapriya

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SLIDE 1 Community Team | Ge Cao, Aaron Wolf, Veerapriya Veerasubramanian, Joanna Vodopivec 1

Controlling Children’s Asthma in Chicago’s South Side

| iDX Workshop | Spring 2015 | Community Team

Pediatric Asthma Care in Communities

| IxD Workshop | Spring 2015 | Community Team

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SLIDE 2 Community Team | Ge Cao, Aaron Wolf, Veerapriya Veerasubramanian, Joanna Vodopivec 2

130,000

Nearly 60% of Chicago children had a severe

Nearly 60% of asthmatic children in Chicago had a severe attack in the last year Children sufgering with asthma in Chicagoland

Asthma is a substantial problem in impoverished communities.

~30

Number of dedicated CHWs working with asthmatic children in Chicagoland

1,500+

Number of CHWs needed to serve all asthmatic children in Chicagoland

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SLIDE 3 Community Team | Ge Cao, Aaron Wolf, Veerapriya Veerasubramanian, Joanna Vodopivec 3
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SLIDE 4 Community Team | Ge Cao, Aaron Wolf, Veerapriya Veerasubramanian, Joanna Vodopivec 4
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SLIDE 5 Community Team | Ge Cao, Aaron Wolf, Veerapriya Veerasubramanian, Joanna Vodopivec 5
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SLIDE 6 Community Team | Ge Cao, Aaron Wolf, Veerapriya Veerasubramanian, Joanna Vodopivec 6
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SLIDE 7 Community Team | Ge Cao, Aaron Wolf, Veerapriya Veerasubramanian, Joanna Vodopivec 7

The CHW’s perspective

Thu Supervisor

“During the baseline visit our CHWs, (...), they do some sort

  • f magic and through their

interaction the participant are able to build that trust and

  • relationship. That is all because
  • f the qualities that they posses.”

Jessica Supervisor

“I think it is really about having key players working together. The better the partnership, the better help we can give to pa-

  • tients. Having both of those,

that is the key.”

Madeline CHW

“Gang violence in the neighbor- hood is the biggest issue. You must stay watchful, mindful, prayerful.”

Rhonda CHW

“In a typical day our CHWs go on

  • ne or two visits a day. We

typically just restrain it to at most three visits because more tan three is a lot to handle in one day.”

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SLIDE 8 Community Team | Ge Cao, Aaron Wolf, Veerapriya Veerasubramanian, Joanna Vodopivec 8

Insights

CHW QUALITIES They wear many hats: educator, therapist, advisor. Helping families with more than just asthma, but other life issues. RESPONSIBILITIES They collect data and have expertise and hands-on knowledge. BACKGROUND They are from the same neighborhood as the participants, so they feel their hardships. COMMUNICATION There are many difgerent stakeholders to reach out, but limited time and tools.

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SLIDE 9 Community Team | Ge Cao, Aaron Wolf, Veerapriya Veerasubramanian, Joanna Vodopivec 9

school staff teachers parents neighbors extended familly secondary caregivers coaches primary physician SCHOOL TEAM MEDICAL TEAM HOME/NEIGHBORHOOD TEAM

CHW

asthmatic child school nurse nurse pharmacist

Pediatric asthma care teams

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SLIDE 10 Community Team | Ge Cao, Aaron Wolf, Veerapriya Veerasubramanian, Joanna Vodopivec 10

school staff teachers parents neighbors extended familly secondary caregivers coaches primary physician SCHOOL TEAM MEDICAL TEAM HOME/NEIGHBORHOOD TEAM

CHW

asthmatic child school nurse nurse pharmacist

Pediatric asthma care teams

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SLIDE 11 Community Team | Ge Cao, Aaron Wolf, Veerapriya Veerasubramanian, Joanna Vodopivec 11

school performance & awareness

school staff teachers parents neighbors extended familly secondary caregivers coaches primary physician SCHOOL TEAM MEDICAL TEAM HOME/NEIGHBORHOOD TEAM

CHW

asthmatic child school nurse nurse pharmacist

Mismatched priorities

time & money time, communication & trust

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SLIDE 12 Community Team | Ge Cao, Aaron Wolf, Veerapriya Veerasubramanian, Joanna Vodopivec 12

Biggest challenge

There is a lack of communication between difgerent stakeholders. As a result, people are not

  • n the same page working against asthma.
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SLIDE 13 Community Team | Ge Cao, Aaron Wolf, Veerapriya Veerasubramanian, Joanna Vodopivec 13

Current solutions are ineffjcient

school staff teachers parents neighbors extended familly secondary caregivers coaches primary physician SCHOOL TEAM MEDICAL TEAM HOME/NEIGHBORHOOD TEAM

CHW

asthmatic child school nurse nurse pharmacist

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SLIDE 14 Community Team | Ge Cao, Aaron Wolf, Veerapriya Veerasubramanian, Joanna Vodopivec 14

Looking forward

Could there be a future where all parties communicate with each other?

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SLIDE 15 Community Team | Ge Cao, Aaron Wolf, Veerapriya Veerasubramanian, Joanna Vodopivec 15

We found an underutilized resource in the community: experienced caregivers—parents of asthmatic children that have had hands-on knowledge about asthma care.

K N O W L E D G E C O M M U N I T Y T O O L S V A L U E A U T H O R I T Y C O N N E C T E D T R U S T E D D A T A

Community Health Worker

K N O W L E D G E C O M M U N I T Y T O O L S V A L U E A U T H O R I T Y C O N N E C T E D T R U S T E D D A T A

Experienced Caregiver

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SLIDE 16 Community Team | Ge Cao, Aaron Wolf, Veerapriya Veerasubramanian, Joanna Vodopivec 16

How might we unlock the knowledge

  • f experienced asthma caregivers in
  • rder to create a self-sustaining network?
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SLIDE 17 Community Team | Ge Cao, Aaron Wolf, Veerapriya Veerasubramanian, Joanna Vodopivec 17

Introducing Radius is a platform enabling experienced caregivers to become mentors and connect them with families in need.

12

I am here to... Sign up I am a..

OR

Seek help Provide help Community Health Worker

Radius

163 163 Aug 15 22 29 Sep 5 Aug 15 22 29 Sep 5 12 100% 8:08 AM I am here to.. I am a.. OR Seek help Provide help Community Health Worker Sign up

Radius

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SLIDE 18 Community Team | Ge Cao, Aaron Wolf, Veerapriya Veerasubramanian, Joanna Vodopivec 18

First emergency department visit

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SLIDE 19 Community Team | Ge Cao, Aaron Wolf, Veerapriya Veerasubramanian, Joanna Vodopivec 19

CHW’s fjrst home visit and primary mentor selection

75% iPad 75% 8:08 AM Profile 13 Reviews Linda was very helpful when my son had an attack. She arrived home in 10 minutes and gave me instructions on how to handle the situation. I realy panicked and was planning to tke my son Carlos to the ED. She gave me clear instructions about how the use the inhaler. March 2015 Susan connected me with Linda a couple of months ago. We met once and spoke a lot about our lives and Linda shared her experiences with her son’s Asthma and how she handles it. Her story is very inspiring and motivated me and my family to get more serious about Asthma prevention. About I am a 30 year old single mom with one son. I have experience dealing with Asthma and would like to help. I have been living in Engelwood for the last 20 years. I have had Asthma myself as a kid. It is under control now. Feel free to contact me. Expertise Management of Asthma with Sickel cell disease. Early Asthma care and prevention. Linda Age: 45 HELPED LEVEL Neighbourhood Engelwood 75% iPad 75%

Profile

13 Reviews Linda was very helpful when my son had an attack. She arrived home in 10 minutes and gave me instructions on how to handle the situation. I realy panicked and was planning to tke my son Carlos to the ED. She gave me clear instructions about how the use the inhaler. March 2015 Susan connected me with Linda a couple of months ago. We met once and spoke a lot about our lives and Linda shared her experiences with her son’s Asthma and how she handles it. Her story is very inspiring and motivated me and my family to get more serious about Asthma prevention. About I am a 30 year old single mom with one son. I have experience dealing with Asthma and would like to help. I have been living in Engelwood for the last 20 years. I have had Asthma myself as a kid. It is under control now. Feel free to contact me. Expertise Management of Asthma with Sickel cell disease. Early Asthma care and prevention. Linda Age: 45 HELPED LEVEL Neighbourhood Engelwood
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SLIDE 20 Community Team | Ge Cao, Aaron Wolf, Veerapriya Veerasubramanian, Joanna Vodopivec 20

Primary mentor home visit

163 163 A u g 1 5 2 2 2 9 S e p 5 A u g 1 5 2 2 2 9 S e p 5 1 2 100% 8:08 AM Step by step inhaler tutorial for beginners Asthma symptoms Posted 10 days ago. Best practices Posted 20 days ago. Other videos : 2
  • 3
: 4 8

2

Library Inhaler use Triggers Community Contacts Videos Action plan 100% 8:08 AM Other information
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SLIDE 21 Community Team | Ge Cao, Aaron Wolf, Veerapriya Veerasubramanian, Joanna Vodopivec 21

Crisis happens

Calling for help.... 100% 8:08 AM Cancel Request
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SLIDE 22 Community Team | Ge Cao, Aaron Wolf, Veerapriya Veerasubramanian, Joanna Vodopivec 22 Calling for help.... 100% 8:08 AM Cancel Request Request Mentor Amanda has accepted your request 100% 8:08 AM

Crisis happens

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SLIDE 23 Community Team | Ge Cao, Aaron Wolf, Veerapriya Veerasubramanian, Joanna Vodopivec 23 Calling for help.... 100% 8:08 AM Cancel Request Request Mentor Amanda has accepted your request 100% 8:08 AM Messenger Hi Amanda, my son was coughing continuously and I gave him Albuterol a while ago. No improvement. How many puffs did he take? With or without spacer? 100% 8:08 AM Type here..

Q W E R T Y U O I P A S D F G H K J Z X C V B N M L

space 123 return

I’m but I

Calling for help.... 100% 8:08 AM Cancel Request Request Mentor Amanda has accepted your request 100% 8:08 AM Messenger Hi Amanda, my son was coughing continuously and I gave him Albuterol a while ago. No improvement. How many puffs did he take? With or without spacer? 100% 8:08 AM Type here..

Q W E R T Y U O I P A S D F G H K J Z X C V B N M L

space 123 return

I’m but I

Crisis happens

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SLIDE 24 Community Team | Ge Cao, Aaron Wolf, Veerapriya Veerasubramanian, Joanna Vodopivec 24

CHW learns about the interaction from both parties

Review Please rate your latest mentor session

Submit feedback

Tell us more.. 100% 8:08 AM Cancel

Latest community posts

163 163 Aug 15 22 29 Sep 5 Aug 15 22 29 Sep 5 12 Home Triggers Behaviors Smoke Pollen Dust Feather Pets Mold Odor Weather Cancel

Hi Amanda, what problems do you notice here?

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SLIDE 25 Community Team | Ge Cao, Aaron Wolf, Veerapriya Veerasubramanian, Joanna Vodopivec 25

Mentee becomes a mentor, takes a test

100%

Asthma mentor test

Level 1

  • Q1. Your child is playing outside, and is not having
trouble breathing. You do not hear any cough or
  • wheezing. Please choose the correct zone.
  • 1. Green
  • 2. Yellow
  • 3. Red
163 163 Aug 15 22 29 Sep 5 Aug 15 22 29 Sep 5 12 100% 8:08 AM Test
  • Q2. When your child has been in the green zone
for several days, how long should you continue daily controller medication?
  • 1. Any medications the doctor prescribed, everyday
  • 2. Use the medication until the prescription runs out
  • 3. No medication as long as they are feeling okay
  • 4. Until your child feels better, then they can stop taking
it.
  • Q3. When a child coughs continuously what would

2

Title 100%

Click to view

100% 8:08 AM

Congrats Lucy!

You are now certified as a level 1 mentor

Susan has added material to your knowledge library

1

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SLIDE 26 Community Team | Ge Cao, Aaron Wolf, Veerapriya Veerasubramanian, Joanna Vodopivec 26

As more people join the asthma ecosystem, the lines of communication become stronger.

CHW asthmatic family

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SLIDE 27 Community Team | Ge Cao, Aaron Wolf, Veerapriya Veerasubramanian, Joanna Vodopivec 27

As more people join the asthma ecosystem, the lines of communication become stronger.

CHW mentor asthmatic family

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SLIDE 28 Community Team | Ge Cao, Aaron Wolf, Veerapriya Veerasubramanian, Joanna Vodopivec 28

Further opportunities

This is applicable to other diseases and is scalable, inexpensive, and nearly self-suffjcient.

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SLIDE 29 Community Team | Ge Cao, Aaron Wolf, Veerapriya Veerasubramanian, Joanna Vodopivec 29

Thank you!