2017 Child Personal Health Record LEARN THE SIGNS. ACT EARLY . - - PowerPoint PPT Presentation

2017 Child Personal Health Record LEARN THE SIGNS. ACT EARLY.

Personal Health Record (Blue Book)

NSW Health guidance to parents has changed over time in line with current evidence 1983 edition 2017 edition

2016-2017 Blue Book review

• Consumer (parents and families) online survey
• Focus Groups
• Clinical Reference Groups

Most significant changes to the 2017 edition of Blue Book

• 1. Physical format of the Blue Book
• 2. Developmental surveillance

The importance in monitoring brain development

Source: The Founders’ Network www.founders.net

Earlier approaches

• Screen e.g. Denver
• Partnership
• Parental Evaluation of

Developmental Status (PEDS)

• Ages & Stages

Questionnaire

Review of development in the Blue Book

Process

• Clinical Reference Group –

undertook a detailed review of all developmental surveillance tools

• Recommend a primary

assessment tool in the Personal Health Record (PHR) based on current evidence and available information Recommendation Adopt Learn the Signs. Act Early. child developmental monitoring tool

About the Learn the Signs. Act Early. program

Centers for Disease Control and Prevention (CDC): is one of the major operating components of the Department of Health and Human Services in the USA. “Learn the Signs. Act Early.”: aims to improve early identification of children with autism and other developmental disabilities so children and families can get the services and support they need.

Research underpinning the program

https://www.cdc.gov/ncbddd/actearly/about-research.html#topics

Formative Communication Research

Parent Results

• Lack of knowledge about cognitive, emotional, and social

development

• Lack of knowledge about developmental delays
• Need to communicate urgency of acting early if there is a

concern about a developmental delay

Research findings – the evidence

Health Care Professional (HCP) results:

• Limited acknowledgement of key childhood

developmental milestones and the importance

• f early intervention among peers
• Most frequently mentioned issue about

childhood development: resources and services Other issues included:

• a poor understanding by parents of the

importance of early intervention

• reliance on parents to bring up developmental

issues

Objectives of Learn the Signs. Act Early.

• Increase AWARENESS of developmental milestones

and early warning signs

• Increase KNOWLEDGE in the benefits of early action

and service system

• Increase parent-provider DIALOGUE on the topic of

developmental milestones and disorders

• Increase EARLY ACTION on childhood developmental

disorders

Benefits of Learn the Signs. Act Early.

• Easily accessible information that can be downloaded

and/or printed

• Provides milestones checklists as anticipatory

guidance to facilitate developmental

• Surveillance discussion
• Broader range of partners (early childhood educators,

general practitioners, practice nurses and Family and Community Services.

• Enhances parents' developmental knowledge and

health literacy.

Learn the Signs. Act Early. milestone checklist

Model Referral Pathway

Local Health District Referral Pathway

• Local Health District to insert their model

pathway

Developmental screening tool

• Ages & Stages Questionnaire for developmental and

social-emotional screening

Resources for parents

Resources to promote Learn the Signs. Act Early.

Learn the Signs. Act Early. Online training module

Watch Me! 1 hour, 4-module course

Resources and contact details

• Child and Family Health Nursing Services

www.health.nsw.gov.au/child-family-health-services

• Blue Book

www.health.nsw.gov.au/mybluebook

• Love Talk Sing Read Play

http://ltsrp.resourcingparents.nsw.gov.au/

• Raising Children

http://raisingchildren.net.au/

• CDC Learn the Signs. Act Early.

https://www.cdc.gov/ Search for Learn the Signs. Act Early.

Contact

April Deering adeer@doh.health.nsw.gov.au